PHA Allied Health Professions consultant, Corrina Grimes and AIIHPC director Paddie Blaney.
A unique survey of patient and carer experiences of palliative care has been launched.
The Let’s Talk About survey is being led by the All Ireland Institute of Hospice and Palliative Care (AIIHPC) with support from the Public Health Agency (PHA).
The survey asks people with illnesses which may not be cured in Northern Ireland and the Republic to share their experiences both good and bad.
This includes people living with conditions such as advanced respiratory disease, cancer, chronic kidney disease, heart failure or dementia.
AIIHPC Director Paddie Blaney urged people to take part and help to improve experiences of care.
She said: “The survey is aimed at people living with a serious or progressive medical condition from which they are unlikely to be cured, someone they know or care for, or someone they knew or cared for in the past two years.
“We are looking for people to be honest and specific telling both their good and bad experiences of care. Each story is valuable, hundreds of stories and more will be powerful,” she said.
The Let’s Talk About survey is also being supported by the Health Service Executive in the Republic of Ireland.
PHA Allied Health Professions Consultant, Corrina Grimes also encourages the public to take part in this opportunity to share their experience.
She said: “Along with the Health and Social Care Board we will look carefully at the responses as they will provide a valuable insight to what improves the quality of life for people with palliative care conditions and will help inform how care and support is delivered across Northern Ireland.”
The survey can be completed online at www.letstalk-about.org or can be provided in hardcopy.
Copies of the survey and Freepost envelopes can be obtained from AIIHPC at 00353 (0) 1 491 2948, or email at [email protected].
All responses are treated confidentially and should take 15-20 minutes to complete.
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