Charlotte and Billy Caldwell
YOUNG Billy Caldwell, who is at the centre of a debate after being prescribed medicinal cannabis debate, is back in the US for hospital treatment.
The 11-year-old is expected to see epilepsy specialist Dr Douglas Norldi early next week to have his condition assessed.
The Caldwell family had a breakthrough by getting the first NHS prescription for the drug issued in the UK.
But medics at the Royal Victoria Hospital have reneged on assurances given to his mum Charlotte about his ongoing treatment.
Charlotte said: “We are back in the US and while we are grateful to everyone here for saving Billy’s life, not once but twice, I don’t want to be here.
“I want my son treated in Northern Ireland on the NHS, but my hand has been forced by lack of contact and treatment by the medical staff at the RVH.
“Ten years ago I was told by people at that hospital to take Billy home and let him die. I could not do that and I fought for his life and he was saved by Dr Nordli in Chicago.
“A year ago he got sick again and again I got no help at home and I sought out Dr Nordli, this time in LA.
“But then things started to change at home and I was given assurances Billy would be treated at the RVH – but it has not materialised and so here were are, back in LA.
“Billy needs a scan to assess how his brain is and the situation around the lesion on his brian. This should be being done in Belfast. Instead we are in America facing a $15,000 bill for the scan alone.
“But without it there is no way to know how to continue Billy’s treatment. He needs it and I will make sure he gets it.
“And I want to thank anyone and everyone who helps us with any donations to help pay this bill. The pressure is horrendous but my son’s life is on the line and it’s my responsibility as his mummy to keep him as well and safe as possible.”
Charlotte and Billy leaving the GP’s surgery with the prescription for medicinal cannabis oil last month
