SDLP Health Spokesperson Mark H Durkan has demanded better for people living with Cystic Fibrosis in the North.
His comments follow the announcement from Scottish government that a deal has been reached with pharmaceutical company Vertex to grant access to the ‘wonder drug’ Orkambi.
Said the Foyle MLA: “Over two years ago, I walked alongside people living with Cystic Fibrosis and their families to Stormont, demanding access to the life-changing drug Orkambi.
“It is frustrating that today, we are seemingly no further forward yet their positive campaign to date, despite continuous challenges has been admirable.
“And whilst news of the Scottish government securing an agreement to introduce Orkambi is no doubt welcome, it is a somewhat bittersweet moment for those living with Cystic Fibrosis in Northern Ireland.
“Not least, the fact that two years on, we still have no functioning government to even fight their case.
“Time is crucial where health matters are concerned- we must ensure that no more time is wasted and start delivering for people on the issues which matter most.
“Scotland have shown effective governance during precarious times, there is no reason why we here cannot achieve the same outcomes.
“Access to the drug Orkambi will save lives and enhance the quality of life for so many people.
“It is necessary and as witnessed in Scotland, access to this ‘unaffordable’ drug is doable.
“The price of good health and improved quality of life cannot be quantified.
“Now is the time to move beyond talking and to start acting.
“We need restoration of our institutions and we need a Health Minister making these life-changing decisions in defence of the health interests of people here,” added Mr Durkan.
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