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Durkan welcomes access to life-changing Spinal Muscular Atrophy treatment

written by cassoscoop November 23, 2021
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SDLP Foyle MLA Mark H Durkan

THE SDLP Chair of the All Party Group on Muscular Dystrophy Mark H Durkan has welcomed confirmation from the Department of Health that Risdiplam, a drug used to treat spinal muscular atrophy (SMA), has been approved for use via Managed Access Agreement.

Mr Durkan and campaigners have fought fervently to see this treatment approved for use in the North of Ireland.

Said the Foyle MLA: “I’m pleased that this life-changing drug has finally been given the green light.

“This is something which I, as Chair of the APG on Muscular Dystrophy and campaigners, have worked hard to progress in recent years.

“I wrote to the Health Minister Swann last year urging his sign-off on this important and potentially life-changing treatment for children, young people and adults who live with this muscle wasting condition on a daily basis.

“All of whom have waited anxiously in the interim waiting for this approval.

“I must pay tribute to the many campaigners including Michaela Hollywood, who have never let up the fight to access this life-changing treatment.

“Hearing from people like Michaela, who are living with SMA, and how their condition affects them and what Risdiplam could offer them, has no doubt been vital in bringing us to this point.

“The price of good health cannot be quantified and I have no doubt that access to Risdiplam will enhance the quality of life for so many people here.”

Durkan welcomes access to life-changing Spinal Muscular Atrophy treatment was last modified: November 23rd, 2021 by cassoscoop

Tags:
Chair of the All Party Group on Muscular DystrophyDerry CityDurkan welcomes access to life-changing Spinal Muscular Atrophy treatmentFOYLE MLAlife-changing treatmentMark H DurkanMichaela HollywoodRisdiplam drugSDLPspinal muscular atrophy
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